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Pandemic recovery in schools will be a ‘long slog,’ says sobering national report

September 20, 2024 By Publisher Leave a Comment

Freshmen attend Algebra 1 at Oakland Technical High School in Oakland, Calif., Monday, May 1, 2017. Student mental health was declining even before the pandemic, research has shown. Photo by Alison Yin for EdSource

Young, disabled, English learners and homeless students are coming back too slowly from effects, report states

By Emma Gallegos, EdSource.org, republished with permission

Nearly five years after Covid-19 began, a national report released Tuesday,  Sept. 17, 2024, shows that recovery from the pandemic for students will be a “long slog.”

“The State of the American Student,” a report by the Center for Reinventing Public Education (CRPE) states that the findings are “sobering, daunting, and discouraging,” and that the slow pace of recovery from the pandemic has left an indelible mark on education, with long-term implications for students’ income, racial inequity and social mobility in the United States.

“If policymakers and educators do not get serious about ensuring these students have access to proven interventions, then we will continue to see the educational impact of the pandemic reverberate for many years, both in our schools and in our economy,” the report stated.

For the last three years, CRPE — a research organization out of the Mary Lou Fulton Teachers College at Arizona State University — has released annual reports examining the academic, social, emotional and mental health effects of the pandemic on students. CRPE Executive Director Robin Lake said the reports were an attempt to ensure that schools wouldn’t go back to business as usual before students were “made whole.”

Fears that the pandemic would widen pre-existing opportunity gaps have come to fruition, according to the report’s summary of a wide span of research. The report focuses extra attention on certain groups: young children, disabled students, English learners and homeless students, and students who still lag far behind from where they would have been if not for the pandemic. Lake added these groups were largely not well served by schools before the pandemic began.

The report takes a sweeping look at the issues that have been harming students’ recovery since 2020, including chronic absenteeism, staffing shortages, poor teacher morale and student disengagement. These are all signs pointing to a pandemic recovery effort that will require a “long haul.”

Struggling students need more attention

Currently, schools are facing “gale-force” headwinds trying to address these challenges, the report states. Pandemic-era funding is drying up, declining school enrollment is stretching district finances, and many educators are facing burnout. But the worst part is that the problem is underappreciated, Lake said.

“Perhaps the most concerning thing to us is how little discussion there is about these problems,” Lake said.

Politicians are not talking about pandemic recovery, especially when it comes to the groups that have been struggling the most, she said. For instance, CRPE pointed out how some states, including California, do a poor job communicating data about how students have fared since the pandemic.

Additionally, parents do not seem to know just how far behind their children are — thanks in part to grade inflation and some schools’ poor communication, Lake said.

USC’s Center for Economic and Social Research conducted interviews with the parents of disabled students.

One parent did not learn from the school that their child was failing two courses, making him ineligible to graduate from high school: “I didn’t know until we were in the process of graduation,” the parent told interviewers.

The number of students who are served under the Individuals with Disabilities Education Act has skyrocketed in recent years. It dipped during the peak of the pandemic when school campuses were closed, but surged again as students returned to the classrooms. It’s not clear why, but different theories have emerged.

While it states that kindergartners who have not attended preschool are more likely to have academic and social struggles, including a rising number of behavioral issues and speech delays, the report notes that students who start school behind their peers may be being over-identified as having a disability or that the high numbers could be because students who might have simply been treading water in a previous era are now being correctly identified as having a disability.

The problems faced by disabled students exemplify many of the biggest struggles of pandemic recovery efforts in schools. Disabled students’ academic performance has long lagged behind other students, but that gap has widened in the wake of the pandemic. The teacher shortage is particularly acute among special education teachers, now that they are needed most. Meanwhile, some effective efforts, such as tutoring, are not reaching disabled students. Low expectations for students with disabilities is a crisis that has failed to garner proper attention and resources, Lake said.

One parent interviewed for the report said that getting help for their disabled students required constant fighting. “Multiple times, they promised in-person, in-school tutoring — which they just were understaffed and were never able to find anyone,” the parent said.

Another parent said that without speech therapy, their son with epilepsy fell behind in school during the pandemic.

“He fell further behind because my husband and I tried our best, but we can only do so much if you’re not a teacher, which is very frustrating,” the parent said in an interview.

Recovery solutions are straightforward

The strategies that helped schools recover have “not been rocket science,” Lake said.

Many schools have been successful with programs such as tutoring, high-quality curricula, extending learning time and improving communication with parents. Some schools are making these strategies a permanent part of the school experience, which is good news: Tutoring and small-group instruction are some of the most powerful tools schools have at their disposal, the report states.

But scaling can be tricky, and many of the students who need help the most are not getting it, CRPE notes. Fewer than half of students who most needed that help enrolled in summer school, according to a Rand study, and just 1% of eligible students in Louisiana enrolled in a tutoring program for struggling readers.

The report recommends focusing on the specific needs of struggling students, such as students with a disability or English learners, rather than so-called average students. Addressing the issues that these students are struggling with will pay dividends for the broader student population, Lake said.

Some schools are demonstrating that recovery is possible, even if it’s not the dominant story right now. Students and educators alike are struggling, but there is a renewed understanding of the crucial role that school plays in a community. That has led to some schools rebuilding and strengthening that institution.

“During the pandemic, you remember, there was so much talk about more joyful education, more engaging, more flexible,” Lake said. “We think that that has actually taken hold.”

Emma Gallegos covers equity issues in education and is based in California’s Central Valley.

Filed Under: Education, Health, News, Youth

Contra Costa expands Basic Health Care coverage for uninsured illegal immigrants

September 5, 2024 By Publisher Leave a Comment

After Supervisors made the estimated 10,000 residents in county eligible 

“While Medi-Cal…includes undocumented residents, some…earn too much money to qualify. And they are not eligible for CoveredCA because they’re undocumented.” 

By Contra Costa Health

Contra Costa Health is now offering affordable health care coverage to uninsured county residents who don’t qualify for Medi-Cal or CoveredCA.

Potentially eligible residents can now call a financial counselor at 1-800-771-4270 to ask about enrolling in Basic Health Care, which offers coverage for primary care, medications, X-rays and more.

While Medi-Cal has expanded to include undocumented residents, some of those residents earn too much money to qualify. And they are not eligible for CoveredCA because they’re undocumented.

“We’re still seeing some people in our community fall through the cracks, unable to get health insurance,” said Gilbert Salinas, chief equity officer for Contra Costa Health (CCH). “Basic Health Care will help fill that gap and give people access to medical care.”

Earlier this year, the Board of Supervisors made undocumented residents eligible for Basic Health Care. It’s estimated that more than 10,000 undocumented residents in Contra Costa are eligible for Basic Health Care.

To qualify for Basic Health Care, residents must have incomes below 300% of the federal poverty level. People enrolled in Basic Health Care will pay a sliding-scale quarterly premium depending on their income up to $20 a month. Enrollment in this program will not be considered as part of a public charge test for immigrants.

Basic Health Care enrollees will be able to access care at Contra Costa Regional Medical Center and the County’s outpatient health centers.

“By improving access to primary medical services through Basic Health Care, we aim to reduce unnecessary visits to local hospital emergency departments,” Salinas said.

For more information, visit our Basic Health Care webpage.

Filed Under: Children & Families, Health, Immigration, News

CA Attorney General announces settlement agreement with Rite Aid Corporation to continue providing pharmacy services statewide

August 20, 2024 By Publisher Leave a Comment

Company agrees to conditions resolving competitive impacts related to changes in ownership involving retail pharmacy outlets

OAKLAND — California Attorney General Rob Bonta today announced a settlement with Rite Aid Corporation (Rite Aid) operating as an injunction to enable him to review changes of ownership involving their retail pharmacy outlets statewide. Additionally, the settlement includes injunctive conditions that resolve competition-related concerns to ensure remaining Rite Aid pharmacies provide necessary medication and healthcare services to Californians, specifically those who may rely on Medi-Cal and Medicare, and protect workers at stores that are sold or closed. Today’s settlement reflects the Attorney General’s efforts to prevent the continued growth of pharmacy deserts, which disproportionately impact low-income individuals, the elderly, and people of color, all of whom are also patients of Rite Aid. The settlement was reached under Assembly Bill (AB) 853.

“Pharmacies are often the most accessible healthcare providers, offering vital services for the well-being of individuals and families. Without them in our communities, Californians could face significant barriers in managing chronic conditions, receiving timely medications, and accessing preventative care,” said Attorney General Bonta. “Today, with AB 853 and conditions set by my office, Californians who rely on Rite Aid pharmacies can continue accessing their medications and essential healthcare services they need to live healthy and fulfilling lives.”

Rite Aid filed for Chapter 11 bankruptcy and began closing nearly 550 stores nationwide since October 2023. California experienced the closure of more than 100 stores statewide; however, approximately 71% of all stores in California have remained open throughout the bankruptcy and with one exception in San Diego, there were two or more competitive alternatives close by for the closed stores. This June, Rite Aid’s bankruptcy restructuring plan was approved by the United States Bankruptcy Court for the District of New Jersey, which turns over control of the company to a group of its lenders.

Under the settlement and AB 853, Rite Aid agrees to the following conditions for the next five years:

  • Use commercially reasonable efforts to maintain the remaining Rite Aid stores, as well as all required licenses.
  • Provide 90-day notice of sale or closure of remaining Rite Aid stores.
  • Continue participation in Medi-Cal and Medicare if commercially reasonable.
  • Provide financial assistance to patients if commercially reasonable to do so.
  • Continue free delivery services to patients who were receiving these services from a closed store in San Diego.
  • Ensure compliance with state staffing levels.
  • Maintain hiring list for all employees from stores that close going forward for preferential hiring at other Rite-Aid stores.
  • Use commercially reasonable efforts to pay retirement contributions if collective bargaining agreements require such payments.
  • Use commercially reasonable efforts to abstain from contesting unemployment for individuals who are laid off as a result of the sale or closure of Rite Aid stores if no nearby Rite Aid store offers employment.
  • Comply with nondiscrimination rules in the provision of healthcare services and to commercially reasonable efforts to provide financial assistance to patients.

The California Department of Justice’s Healthcare Rights and Access Section (HRA) works proactively to increase and protect the affordability, accessibility, and quality of healthcare in California. HRA’s attorneys monitor and contribute to various areas of the Attorney General’s healthcare work, including nonprofit healthcare transactions; consumer rights; anticompetitive consolidation in the healthcare market; anticompetitive drug pricing; privacy issues; civil rights, such as reproductive rights and LGBTQ healthcare-related rights; and public health work on tobacco, e-cigarettes, and other products.

A copy of the settlement can be found here.

Filed Under: Attorney General, Business, DOJ, Health, Legal, News, State of California

Kaiser Permanente’s Contra Costa hospitals recognized for providing high-quality care for heart, stroke patients

August 10, 2024 By Publisher Leave a Comment

Photo: Kaiser Permanente

Antioch, Richmond and Walnut Creek locations among 20 to receive American Heart Association’s Get With The Guidelines®– Heart Failure and Stroke Gold Plus awards

KP clinicians and staff work together to deliver excellent cardiac and stroke care using evidence-based treatment protocols rooted in high-quality scientific research

By Kerri Leedy, Media and Public Relations Manager, Kaiser Permanente

OAKLAND, Calif. – Kaiser Permanente Northern California hospitals are being recognized by the American Heart Association (AHA) for following nationally recognized, research-based guidelines when diagnosing and treating heart failure and stroke patients, leading to more lives saved.

The following Kaiser Permanente Northern California hospitals have received both the AHA Get With The Guidelines®– Heart Failure and the Get With The Guidelines®– Stroke Gold Plus awards: Antioch, Richmond, Walnut Creek, Fremont, Fresno, Modesto, Oakland, Redwood City, Roseville, Sacramento, San Francisco, San Jose, San Leandro, San Rafael, Santa Clara, Santa Rosa, South Sacramento, South San Francisco, Vacaville and Vallejo. Kaiser Permanente Manteca received the Get With The Guidelines®– Stroke Silver Plus award.

Every 40 seconds, someone in the United States has a stroke or heart attack, and heart disease and stroke are the leading and fifth-leading causes of death in the country, respectively. This national recognition from the AHA reflects Kaiser Permanente Northern California’s commitment to providing high-quality heart and stroke care, ultimately leading to more lives saved, shorter recovery times, and fewer hospital readmissions.

“This recognition is a tribute to our physicians, cardiac specialists, and care teams, who are dedicated to delivering high-quality, comprehensive cardiac care and treatment to their patients,” said Maria Ansari, MD, FACC, CEO and executive director of The Permanente Medical Group. “As a result, we are widely recognized for consistently delivering nation-leading clinical outcomes that enable our members and patients to live healthier and longer lives.”

Kaiser Permanente Northern California cardiac care specialists treat a broad range of heart conditions, frequently performing life-saving procedures.​ Using a team-based approach to care, Kaiser Permanente’s connected system enables our cardiologists to share knowledge across locations and specialties. In our communities, Kaiser Permanente members are 33% less likely to experience premature death due to heart disease, according to a 2022 research study.

Kaiser Permanente Northern California is also a leader in stroke care, and our integrated model of care supports close affiliation between our stroke care clinicians and cardiac researchers and specialists.

“The comprehensive cardiac and stroke care and support we provide is leading to better health outcomes for our members and patients,” said Carrie Owen Plietz, FACHE, president of Kaiser Permanente’s Northern California region. “This recognition shows how we use our integrated care model to make sure patients get the care they need so they can recover faster, be healthier, and live longer.”

The Get With The Guidelines®– Heart Failure award is earned by meeting specific quality achievement measures for the diagnosis and treatment of heart failure patients at a set level for a designated period. These measures include evaluation of the proper use of medications and aggressive risk-reduction therapies. Before discharge, patients should also receive education on managing their heart failure and overall health, get a follow-up visit scheduled, as well as other care transition interventions.

The Get With The Guidelines®– Stroke award is earned by meeting specific quality achievement measures for the diagnosis and treatment of stroke patients at a set level for a designated period. These measures include evaluation of the proper use of medications and other stroke treatments aligned with the most up-to-date, evidence-based guidelines with the goal of speeding recovery and reducing death and disability for stroke patients. Before discharge, patients should also receive education on managing their health, get a follow-up visit scheduled, as well as other care transition interventions.

About Kaiser Permanente

Kaiser Permanente is committed to helping shape the future of health care. We are recognized as one of America’s leading health care providers and not-for-profit health plans. Founded in 1945, Kaiser Permanente has a mission to provide high-quality, affordable health care services and to improve the health of our members and the communities we serve. We currently serve nearly 12.6 million members in 8 states and the District of Columbia. Care for members and patients is focused on their total health and guided by their personal Permanente Medical Group physicians, specialists, and team of caregivers. Our expert and caring medical teams are empowered and supported by industry-leading technology advances and tools for health promotion, disease prevention, state-of-the-art care delivery, and world-class chronic disease management. Kaiser Permanente is dedicated to care innovations, clinical research, health education, and the support of community health. For more information, go to about.kp.org.

About Get With The Guidelines®

Get With The Guidelines® is the American Heart Association/American Stroke Association’s hospital-based quality improvement program that provides hospitals with the latest research-based guidelines. Developed with the goal of saving lives and hastening recovery, Get With The Guidelines has touched the lives of more than 12 million patients since 2001. For more information, visit heart.org.

Filed Under: Central County, East County, Health, Honors & Awards, News, West County

CCHealth, Contra Costa College offer SPIRIT course for recovery training

August 10, 2024 By Publisher 1 Comment

Behavioral Health Service Provider Individualized Recovery Intensive Training for young adults with mental health conditions, substance abuse disorder, or both, and parents

Application deadline: October 4, 2024

SPIRIT is a 9-unit college course taught in collaboration with Contra Costa College from January – May on Monday’s and Wednesday’s and June – July on Mondays (in person) with 10 hours a week internship equaling 60 hours. The course teaches students how to develop core skills to empower themselves by attaining and maintaining recovery and resiliency through self-awareness and peer/family support, while learning to assist others in doing the same. The completion of this class leads to a Certificate.

This program is intended for individuals who fit at least one of the following criteria:

  • A person who has self-identified as having lived experience of recovery from a mental health condition, substance use disorder, or
  • A transition-age youth or young adult 18 – 26 who has self-identified as having lived experience of recovery from a mental health condition, substance use disorder, or
  • A person with lived experience as a self-identified family member of an adult experiencing a mental health condition, substance use disorder, or
  • A person who is parenting or has parented a child or adult experiencing a mental health condition, substance use disorder, or both. This person may be a birth parent, adoptive parent, or family member standing in for an absent

Goals

  1. To become more empowered, explore potential and help others learn resiliency and empowerment skills.
  2. To gain an understanding of the importance of peer and family support as an integral part of the recovery and resiliency journey, as well as to the overall behavioral health system of
  3. To gain a working understanding of Contra Costa Behavioral Health’s system of care which includes, Mental Health Services, Housing and Homeless Services, Alcohol and Other Drug Services, and Health Services broadly, and recovery/resiliency-oriented techniques and
  4. To identify, develop and sustain your personal support system, develop and use a personal Wellness Recovery Action Plan and to help others to incorporate these skills into their personal wellness process.
  5. To become more aware of community resources which aid peers and their families, including young adults and children in living successfully within the larger
  6. To explore career options that will help you develop the skills enabling you to find meaningful activity and to learn skills and participate in internship training in the behavioral health

The Behavioral Health Service Provider Individualized Recovery Intensive Training (SPIRIT) includes two components; the comprehensive classroom training and support program, followed by the individualized Work-Study placement. This program is a collaboration between Contra Costa Behavioral Health Services (CCBHS), Office for Peer and Family Empowerment, and Contra Costa College (CCC).

Application Deadline and Mailing Information

Application Process: This APPLICATION is due by October 4, 2024

Please submit your completed application to:

Attention SPIRIT

Contra Costa Behavioral Health Services

Office for Peer and Family Empowerment

1340 Arnold Drive Suite 200, Martinez, CA 94553

Fax (925) 957-5156

For further information about the SPIRIT Training or application, please contact: Bianca Connor at: Bianca.Connor@cchealth.org  (925) 957-5141 or (925) 839-0669 Victoria Fairchild at: Victoria.Fairchild@cchealth.org (925) 957-5143 or (925) 723‑2729.

Training Components

  1. Intensive Training (SPIRIT I and II): The classroom training takes place during the Spring 2025 college semester (starting in January 2025) in partnership with Contra Costa College. It consists of two separate 3 unit college classes (6 units / 93 hours total), SPIRIT I and SPIRIT Students take SPIRIT I for the first half of the semester, and then SPIRIT II during the second half of the semester. Students may not participate in SPIRIT II without successful completion of SPIRIT I.
  2. Work-Study/Summer Internship (SPIRIT III): The work study portion of SPIRIT takes place during the summer 2025 college semester (3 units / 18 hours total), and includes a six-week, 60-hour internship at a human service agency with once-a-week classroom instruction. Students must successfully complete both SPIRIT I and II to participate in SPIRIT III. Students receive 3 units of college credits for successfully completing SPIRIT III (a total of 9 units / 111 hours of class time and 60 hours of internship.
  • Allowance: All students will be eligible for an allowance to assist with transportation and other expenses needed to complete the training.

Download the application form, here – SPIRIT Application 2025.

Filed Under: Health, News, West County

Contra Costa health officer recommends indoor masking again to reduce risk of rising COVID-19 infection

August 6, 2024 By Publisher Leave a Comment

“Face masks are an effective tool to reduce the spread of the virus” – Dr. Ori Tzvieli

“Wearing a well-fitting mask, such as an N95 or KN95 respirator, is a healthy choice indoors, particularly in public spaces or if around people with whom you do not live.” – Contra Costa Health

By Contra Costa Health

With evidence of increased COVID-19 infections throughout the Bay Area, Contra Costa Health (CCH) recommends masking in crowded indoor settings, particularly for those at high risk of serious illness if infected.

This recommendation is not a health order. It aligns with existing state requirements and recent advice issued in neighboring counties.

A particularly infectious strain of COVID-19, FLiRT, is currently spreading throughout the western U.S., and drives the current surge. Wastewater sampling from the county shows a steady increase in the presence of the virus.

From May 9 to July 9, for example, state lab testing of wastewater samples from the Central Contra Costa Sanitary District showed that concentrations of COVID-19 more than quadrupled. Recently, wastewater concentration has plateaued but still remain high.

Health agencies across the Bay Area jointly lifted most of their requirements and orders to mask indoors in February 2022, but strongly recommended use of masking, particularly for those who are high risk for serious illness, as a prevention measure whenever COVID-19 case rates grew high.

“Face masks are an effective tool to reduce the spread of the virus, particularly for those who are at risk for serious illness when there is evidence of elevated COVID-19 activity in the community,” said Dr. Ori Tzvieli, Contra Costa County’s health officer. “This is one of those times. Our health system is not seriously impacted by COVID currently, and our goal is to keep it that way.”

Wearing a well-fitting mask, such as an N95 or KN95 respirator, is a healthy choice indoors, particularly in public spaces or if around people with whom you do not live.

Contra Costa’s only standing COVID-related health order requires workers at healthcare facilities to mask seasonally, from Nov. 1 to April 30 each year, to reduce risk to patients from COVID-19, flu, and respiratory syncytial virus (RSV).

However, workers and visitors to healthcare facilities, including skilled nursing and congregate care facilities, are strongly encouraged to mask now in those settings.

Health guidance for schools and community colleges remains unchanged. But with the school year beginning this month for most campuses in the county, CCH recommends encouraging students and faculty, particularly those who maybe at risk for serious infection, to mask within classrooms and providing masks to anyone who asks for them, when possible.

Other important ways to protect against COVID-19 are to remain up to date on vaccination, testing for COVID-19 whenever you have symptoms, and staying home from work or school whenever you feel ill. Additionally, treatments remain available for COVID 19 for those who may be at risk of serious illness.

Contact your healthcare provider for advice on vaccination, testing and treatment when you are ill. An updated vaccine to protect against COVID-19 infections is expected to be available in late summer or early fall.

Home test kits are available from healthcare providers and pharmacies throughout the county. Check with your healthcare provider or insurer about any cost or copay for testing or test kits.

For more information about COVID-19 in Contra Costa County, visit cchealth.org/covid19.

Filed Under: Health, News

Bay Area Rescue Mission to hold Back to School Block Party in Richmond Saturday, Aug. 3

August 2, 2024 By Publisher Leave a Comment

The Bay Area Rescue Mission – recently ranked as one of the top 0.1% nonprofits in the nation, addressing those in crisis – is hosting its annual block party in downtown Richmond on Saturday, August 3rd. The event is just one very visual way in which the Rescue Mission is expanding its good works from San Francisco out to the rest of the Bay Area.

The Back to School Block Party will include a Saturday full of fun individual and family activities – from the Backpack Giveaway to a Blessing Boutique, and Food, Groceries and Housewares Giveaways to The Kid’s Fun Zone. The event will give those in need the ability to “shop” for free resources that will help attendees get ready for the school year, prepare for the cold winter months ahead, get complimentary haircuts and much more. All in all, the event promises to have a real impact on the community.

“The 1,200 backpacks we’re giving away on Saturday were all packed by Chevron employees. They’ve been spoken for as people registered for them,” shared CEO Bram Begonia. “This is a huge thing. We close down the streets. We have gently used and new clothes in our Clothing Boutique. We’ll have a grocery give-away.”

We have Contra Costa Community College giving out food. We’ll have 50 community partners, here,” he added.

Asked if people have to register Bram stated, “The only thing people had to sign up for ahead of time was the backpacks.

Located on MacDonald Avenue between 1st and 3rd Streets, the event will run from 10 AM to 2 PM.

For more information about the Rescue Mission visit www.bayarearescue.org.

 

Filed Under: Children & Families, Community, Faith, Government, Health, Homeless, West County

Patients’ donations of tissue are being hoarded hindering medical research

July 30, 2024 By Publisher Leave a Comment

Source: Children’s Tumor Foundation

By Annette Bakker, President, Children’s Tumor Foundation

Imagine receiving the shattering news that your daughter has cancer. Suddenly, you’re battling for her life. In the midst of treatment, you’re asked to sign a flurry of consent forms for her tissue to be donated for scientific research. 

Seeking to help others devastated by the same cruel disease, you agree. But in a twist, you’re never told how her tissue samples are actually being used — or if they ever get used at all.

You wouldn’t be alone. I lead the Children’s Tumor Foundation, a nonprofit dedicated to fighting a rare genetic disease called neurofibromatosis, or NF. There’s no cure for the condition, which causes tumors to grow on nerves. The families I work with are desperate for treatments. That’s why they sign the many lengthy “informed consent” documents presented to them at hospitals, asking for permission to use tissue taken for research. But they have no control over how those samples are eventually utilized. Often, specimens simply collect dust on shelves. 

The same thing happens frequently to older cancer patients and those battling other diseases. Many have undergone a biopsy or provided another tissue sample for the purpose of testing or treatment. They often wrongly assume that their samples will be used to aid research, and so sign out of a wish to help others.

Unlike organ donation, the market for “biomaterial” is largely unregulated. Hospitals typically provide it to “biobanks,” storage facilities that enter into partnerships with hospitals to gain access to tissue.

Currently, biobanks often impede medical progress by hoarding specimens. I know firsthand that a lack of access to tumor samples and cell lines is a major problem for NF research. I regularly encounter obstacles in helping researchers obtain these materials. 

Even when biobanks do provide specimens to researchers, they typically choose those with whom they have strong personal relationships or who can help them publish in prestigious publications. That means researchers in many fields lack access to tissue that would validate their hypotheses.

Most cancer patients want to support research, even if they don’t stand to benefit directly. But it’s deeply unfair to take someone’s tissue or bone marrow without telling them how such tissue will be used — or giving them a say in who gets to use it. 

Beyond basic ownership, patients should have more input on how their biomaterial is used. They should be able to decide for themselves which researchers receive their specimens — or consult with trusted patient organizations to make such decisions. They should also have the option to donate only to nonprofit biobanks, or to stipulate that access to their material shall not be restricted at all. 

While some biobanks tout a supposed commitment to valuing patient input, these proclamations are little more than window dressing in practice. To give patients a real say in the tissue donation process, we need patient committees for biobanks at large hospitals. Numerous studies have found that public involvement in biobanks bolsters long-term medical research and ensures more samples end up in laboratories.

Patients deserve transparency and influence when it comes to how their own bodies are used for research. Empowering them to make informed decisions will help accelerate medical progress for the greater good.

For information about the Children’s Tumor Foundation visit www.ctf.org.

Filed Under: Children & Families, Health, News

First West Nile Virus death since 2006 reported in Contra Costa County

July 26, 2024 By Publisher Leave a Comment

Source: CCCounty

Victim was adult man in East County

One dead bird, five sentinel chickens test positive for virus, all in Oakley

By Contra Costa Health

A Contra Costa resident died this month from West Nile virus infection, underscoring the need for everyone in the county to take precautions against mosquito-borne illness.

The death of an adult man who lived in East County was reported to the county on July 16. It was the first West Nile virus-related death reported in Contra Costa since 2006.

“This is a tragedy, and we offer our deepest condolences to the family and loved ones for their loss.” said Dr. Meera Sreenivasan, deputy county health officer. “This death also reinforces how important it is to reduce risk of West Nile virus infection by reducing our exposure to mosquitos.”

Contra Costa Health’s (CCH) Communicable Disease Program is investigating the case and has not determined where the person became infected. To preserve medical privacy, CCH will not release further details about the case.

The Contra Costa Mosquito and Vector Contra District (District) has detected other recent evidence of the virus’s presence in East County. One dead bird and five sentinel chickens have tested positive for the virus in Contra Costa County, all located in Oakley. According to the Delaware Journal of Public Health, “Chickens serve as valuable sentinel animals since they are not effective amplifying hosts, and they develop a short and relatively low viremia compared to other bird species when infected by WNV.”

Certain birds can become infected with West Nile virus, and when a mosquito feeds on an infected bird, the mosquito can become infected. An infected mosquito can spread the virus to a human or other animal through a single bite. The infection can be dangerous to humans, with symptoms such as fever, headache, vomiting, or rash.

“We are deeply saddened by the loss of a Contra Costa County resident to West Nile virus,” said Paula Macedo, Ph.D., district general manager. “This tragic event serves as a stark reminder of the importance of protecting ourselves from mosquito bites and supporting community efforts to control mosquito populations.”

West Nile virus activity is typically higher during the summer months. To reduce the risk of mosquito bites, the District recommends using U.S. Environmental Protection Agency registered insect repellents with one of the following active ingredients:

  • DEET
  • Picaridin
  • The repellent version of Oil of Lemon Eucalyptus
  • IR3535

Always follow the instructions on the label when using insect repellent. Wearing long sleeves and pants when outdoors where mosquitoes are present, often at dawn and dusk, can reduce exposed skin and reduce the risk of mosquito bites. And dumping out any amount of standing water in front and backyards and scrubbing the inside of each container to remove mosquito eggs can also help lower the risk of mosquitoes.

The District provides public health services to Contra Costa County residents including a mosquito service of inspection and control upon request. Request a District service by phone at 925-685-9301 or online at www.contracostamosquito.com. Click on “I Want to” at the top of the webpage, then select “Request Services” from the drop-down menu.

Contra Costa County residents can help the District identify areas of potential WNV risk by reporting dead birds to the California Dead Bird Call Center by phone at 1-877-968-2473 or online at westnile.ca.gov. Dead birds are often the first sign of West Nile virus in a particular area. By reporting dead birds, residents provide the District with critical information that allows District employees to set mosquito traps near the site of the dead bird to look for infected mosquitoes. If those mosquitos are found, the District will take timely action to reduce the risk of mosquito-borne disease for neighboring residents.

Allen D. Payton contributed to this report.

Filed Under: East County, Health, News

Kaiser Permanente mom from Brentwood to cheer on son at Paris Olympics

July 23, 2024 By Publisher Leave a Comment

Ncal-Olympics-02 – Denise and CJ Nickolas in 2009. (Left) 80Kg Gold Medalist Carl CJ Nickolas’ first flag run after he won the Taekwondo competition at the Santiago 2023 Pan American Games October 22, 2023, in Santiago, Chile. Photo by Mark Reis, USOPC. (Center) Ncal-Olympics and Ncal-Olympics-01 CJ Nickolas at the Pan American Games in Santiago, Chile in October 2023. Photo credit by Mark Reis, USOPC (Right)

A nurse in Antioch, CA has nurtured her 22-year-old son’s taekwondo ambitions since he was 3

Expected to compete for gold, CJ Nickolas, a former Heritage High student, was first trained by his father at Givans Taekwondo in Antioch

By Elizabeth Schainbaum, Manager, Regional Content, Corporation Communications, Kaiser Permanente Northern California

Over the years, wound care nurse Denise Nickolas would talk with colleagues about her kids’ sports activities — just as others would talk about their own kids.

Most colleagues didn’t realize her kids were different. They didn’t know how seriously athletic they were after he won a medal in World Taekwondo Championship in May 2023 when her son, CJ, received publicity as he vied for a spot on the U.S. Olympic team.

CJ is competing in the Paris Olympics in taekwondo on August 9, 2024. The 22-year-old is ranked second in the world.

“She doesn’t go around telling just anyone how he ranked at tournaments,” said Daniella White, a colleague who has cheered Nickolas on through CJ’s injuries and other challenges. “If someone asks, she will humbly share how well he did. That’s not to say she wasn’t overly proud or excited for him, but she just continued to show humility in the process.”

Kaiser Permanente fan club

Nickolas is happy everyone knows now.

“Everyone is so excited, and they asked why I didn’t say anything,” said Nickolas, who was a gymnast in college and also achieved a taekwondo black belt during her son’s practices. “They’ve been so supportive and even started a Teams group to cheer us on and check the progress of his Olympic bid.”

Her boss, Darci Walker, is a big fan.

“I remember her sharing one of CJ’s competitions where he won first place, and he moved the entire crowd and audience by singing the national anthem. The whole stadium joined in and sang together,” Walker recalled. “This was a very proud moment that Denise shared with me. When I watched the video on her phone, it brought me to tears as well. We are all excited for CJ and their entire family.”

A ‘family-friendly’ organization

Nickolas has worked at Kaiser Permanente since 2001. Since then, as a single mom, she’s juggled full-time work with two kids who were competitive athletes.

Her older daughter, now 24, was an elite gymnast for a long time. She pivoted to diving, and that was the sport she did in college.

Her kids’ sports often required traveling to competitions. Nickolas said her managers and colleagues have been supportive and accommodating when she’s had to take time off, even last minute.

“Kaiser Permanente is absolutely a family-friendly organization,” she said. “I was able to have the life I wanted with my kids because of Kaiser Permanente.”

To make it work, she would essentially work two part-time jobs and lived just 10 minutes from the hospital.

She would start the morning at the Antioch Medical Center and then take the kids to their practices. Later, she would work another shift with Home Health Department.

“I was exhausted, but it was worth it, totally worth it,” Nickolas said. “I’m so grateful.”

Walker said Nickolas also worked hard to make it work. She coordinated well with colleagues before she would travel so there were no bumps with patient care. When she returned, she was ready to get back into the swing of work.

Going for gold

Nickolas followed this routine for years. She realized in 2007 that CJ, who had been doing taekwondo for three years at that point, had a future in competitive sports.

At the age of three, he said he wanted to do martial arts. She hesitated because she was against combat sports at the time.

She pushed that feeling aside because she could see how eager he was to do it. She steered him to taekwondo because it was included in Ivy League sports programs and was an Olympic sport.

When he was about 6, she noticed he was intense and focused. She checked in with the coach.

“’Am I just proud or is he really good?’” she recalled saying. “The coach said, ‘No, he’s really as good as you think he is.’”

That coach, until CJ turned 18, was his father, Ed Givans, who previously owned and trained his son at Givans Taekwondo in Antioch which he relocated to Las Vegas in 2018. Givans is also on the Tournament Committee for USA Taekwondo and has another competitor he’s trained on the four-person U.S. team at the Olympics, Faith Dillon. As of last December, CJ was ranked number two in the world. She earned her spot at the Pan Am qualification tournament in April.

Many injuries later, including a broken toe that she said Kaiser Permanente did an excellent job of repairing, he’s now going for Olympic gold.

Nickolas will be there watching, with her Kaiser Permanente colleagues rooting for her son.

“I can’t believe this day has come,” she said. “He’s worked so hard, but it still feels so surreal.”

Watch CJ represent Team USA and compete on August 9th on the NBC channels.

Learn more about CJ’s experience and victories through the years, here, here and here.

Allen D. Payton contributed to this report.

Filed Under: East County, Health, News, Sports

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